About

SMAM.

We are non-profit organisation based in Malaysia that provides education, care and support for patients and parents affected by Spinal Muscular Atrophy.

HISTORY.

Spinal Muscular Atrophy Malaysia (SMAM) is an association represents

spinal muscular atrophy patients to voice up all over Malaysia. The

members not only comprise from patient, in fact patient's family member

namely their parents, siblings and also friends that are considerate on this disease.

This association registered to Registry of Societies of Malaysia officially on 29 January 2017, which is initially SMAM only a small SMA patient group

in Facebook social website.

SMAM function as a organisation which unite all patients, family member

and public throughout the country to share any information and

information related disease that very rarely found this. Through this

association too , the members can interact, giving moral support and share experience in patient care between one each other.

SMAM Association also often arrange meetings among members and

involved in various activities sponsorship for the purpose of increasing society's awareness in Malaysia on this disease's existence.

MISSION &

VISION.

Provides space (platform) for interaction among members as a place to gain moral support.

Provides information to the public about Spinal Muscular Atrophy disorder & enhances public awareness.

Helps in applying medical, health, education, infrastructure and mobility assistance from government agencies and the private sector needed by members of the association.

Provides letter of support to members who apply for the job from government agencies and private sector.

Consult physician (medical experts) for members for he association.

Our vision is to collaborate with the government agencies and the private sector in bringing orphan drugs such as SPIRANZA and CHERISH from American pharmaceutical company Biogen and any other SMA medication to Malaysia.