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Strong Together - Rare

Various parties help to raise public awareness about Rare Diseases. Boleh Space also played a role in organizing the 'Rarely Seen' Talk Program in conjunction with the World Rare Disease Day 2022. This program have taken place on 26 February 2022, 2 - 4 pm online. The invited panel members were:

1) Prof. Dr. Thong Meow Keong Professor of Pediatrics & Clinical Genetics Consultant, University of Malaya Medical Center and also a Trustee of the Rare Diseases Alliance Foundation Malaysia (RDAFM),

2) Ms. Siti Safura Jaafar

Medical and Research Exco & Co -Founder, Spinal Muscular Atrophy (SMA) Malaysia, and,

3) Mr. Azfar Firdaus

Albinism Activist & Freelance Model.

Together we gain knowledge about Rare Diseases in Malaysia. To watch the recording, please click this link:

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